Fay January 30, 2011

Fay is learning that she needs to take it easy or pay for it. She is struggling to get used to the medications she is taking and learning to redefine what a good day is. She is still vomiting and having a tough time keeping food down. Her pain level is much lower than it was last week. Her family continues to be grateful for your prayers and services. Tonight Sister Peck brought cookies over. They were so good! Thank you!

Fay, January 27

Fay has had a night to sleep on the news of a canceled surgery. She feels a little better about it, but is also asking that a Perinatologist be brought in for consult too. They are weaning her off the epideral and trying her on a different pain med. It was agreed that if the pain is not managed, then in two weeks she will have the surgery performed. It has been a very big roller-coaster ride. She's ready to get off! If everything goes well, she will be discharged tomorrow. Please keep the prayers coming. It has made a big difference. Just trust me on this one!

surgery canceled

Fay was to have surgery at 4:00 this afternoon, At 4:30 the doctor came into her room and told her that he was cancelling the surgery. Talk about a day filled with up and downs. The neurologists who were called in to consult, (neurology feels there is spinal involvement. But Dr. Bull does not really believe that, he feels the tumor is resting in an incostal nerve, and that is what is causing the pain.) feel that if the surgery goes Fay will loose the baby. Tumors of this size can be (doesn't mean it will be) very vascular. The blood lose would cause Fay to abort the baby. Neurology feels that Anesthesia can work with Fay with different forms of blocks that will allow her to manage her pain until she can give birth. This can present a problem too, how long do you wait? The doctor and Fay have agreed to give it two weeks. Then we might be back here again. The best senario is that the pain is managed and Fay can move on for a while. If not, we come do it all over again!

Fay, January 26

Fay had a rough night last night. We all hoped that the spinal block would help her control the pain she was feeling. During the night the pain increased to a point that it was no longer controllable or tolerable. Today they increased the strength of the block and also gave her Oxy-Cotton to get her through the rough times. Tonight she was experiencing some discomfort but was fine with it. Her surgery is tomorrow at 4:00pm Mountain time. I will post as often as I hear how she is doing. Remember she will be in ICU following surgery and then onto the Cardiac Unit when she is stable enough. Please keep her in your prayers. Those prayers have helped strengthen her as well as her family. Fay and Jared's wild little one told grandma (that's me) that I could go home now. Mommy didn't need me anymore!

Fay, January 24

We kind of had a real blow delivered today. So before I tell you what happened, I want you each to know that we believe when all is said and done, Fay will be okay.

We met with the surgeon today. He was very kind to Fay. We discussed what the surgery was going to involve and the magnitude of what needed to be done. The tumor is very large. Because of the size, they believe it will be very vascular also. This type of tumor usually presents itself with no pain. When there is pain, then comes the likelihood, that even though the biopsy came back negative, they're is a malignancy. The other reason for such intense pain is that possibly the tumor is involved with the spinal chord.

Fay was admitted today and a Thoracic nerve block was performed. (I don't think I said that right, but it's an epideral block, but higher up the spine.) When I left Fay tonight, she was comfortable. It has been a long two weeks of very intense pain. Surgery is set for Wednesday afternoon. From Surgery, Fay will be admitted into ICU. We hope to have her home in a week. The doctor said this surgery is in magnitude to that of open heart surgery.

Again, even with the blow we received today of the likelihood of a malignancy, we can't help but feel, when all is said and done, that Fay will be okay. If she needs more treatments after the birth of this little one, it will be okay. Please continue your prayers. They are a great support to us and Fay.

Fay had a rough night and rough morning. The tumor really has caused her a lot of pain. But the last couple of days, she has had a window of time in the middle of the day where she doesn't feel really bad. We like those times. Her doctor is changing her pain meds so they can find one that will take more of the pain away. We are all looking forward to this tumor thing being gone. During her better part of the day, we talked about having a "Schwannoma Fare Well". We'll see how tomorrow goes. Please don't quit on your prayers in her behalf. They are such a support for all of us. This is one of the greatest lessons I have learned., I had never looked at prayer as being a service. Keep on serving!!!!

Fay, January 21

Fay had a better night last night and was even able to eat some food today. She was able to sleep a bit and got dressed and even went to a store. Her pain is intense at times and difficult to control. Right now she is hurting so bad and will not let Jared or I call the doctor. We will wait a while longer and then call ourselves. Please continue your prayers.

Fay

Last night Fay got a little more rest. Her doctor her in Rexburg was able to help her piggy back some of her drugs so that the affect of them will last longer. She is pretty much in bed all the time. She has a hard time holding food down. She is trying to be patient, but trust me, that is not her forte! Guess where she gets that from? Not me!!!!!!!

Please keep praying for her. You just can't understand the magnitude of that service. Feel free to add your comment to this blog, I will give them to Fay to read.

Everyone..............Have a good day!